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Advocate

Happy Sunday! I will be visiting Washington, D.C. to attend this event hosted by EveryLife Foundation for Rare Diseases to advocate for...

Research

After being diagnosed with Gorham-Stout Disease I have done extensive research. My research has led me too many medical reports and terms...

Support

Last night I went to my first support group. I was welcomed, laughed, and cried. It was long overdue to participate with other people at...

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