Holly's Rare Disease Journey

I am currently under treatment at the cancer center. I take Sirolimus and Fluconazole daily. I also get Zometa infusions. I recently had my G-Tube removed and continue to consume the prescribed Kate Farms formulas. I solely rely on them for nutrition. I am halfway through treatment and will hopefully be ready to have a new jaw construction. This requires two teams of specialists, an Ears Nose & Throat Surgeon, and a Maxillofacial Surgeon. My left fibula was used prior along with titanium plates to create a new jaw. This next surgery will require my right fibula and partial shoulder to rebuild my jaw. I am currently preparing myself mentally for this. I have been operated on many times; my face and body are no longer by the hands of God. I desire to have a jaw and teeth again. With the right experts and advanced technology, I know it will happen. My passion was cooking before this happened. I have since changed my focus to help others. I returned to college and have a 4.0 GPA. My goal is to be accepted into the Radiologic Technology program. I have had many CT scans and found myself fascinated by the technology. I have given all my specialists permission to study me for further research. I am grateful for this time in my life and although difficult, I know everything is in its divine order. I want to be a problem solver and part of the solution.  

Thank you for taking the time to learn more about me.